Copyright
The CDLQI is copyright world-wide and can only be reproduced with permission from the authors.
The USA Library of Congress Registration
Number: TXU 620272
Registration Date: 7 February 1994
Authors
Dr M S Lewis-Jones and Professor A Y Finlay
The copyright statement
© Children's Dermatology Life Quality Index. M S Lewis-Jones,A Y Finlay, May 1993. This must not be copied without the permission of the authors. The copyright statement must always be reproduced at the end of every copy of these questionnaires in whatever language.
Permissions
There is a simple method for getting formal permission for use of the CDLQI. Please contact Professor A Y Finlay or Dr M S Lewis-Jones directly at the addresses given below. Formal permission is usually given immediately.
Please Contact
Professor Andrew Y Finlay
Department of Dermatology
Cardiff University School of Medicine
Heath Park, CARDIFF CF14 4XN
Wales, United Kingdom
Telephone: + 44 (0)29 20744721
Fax: + 44 (0)29 20744312
e-mail:
finlayay@cf.ac.uk
Dr M S Lewis-Jones
Consultant Dermatologist
Ninewells Hospital & Medical School
Department of Dermatology
DUNDEE, Tayside DD1 9SY
Scotland, United Kingdom
Telephone: + 44 (0)1382 660111
Fax: + 44 (0)1382 660445
e-mail:
sue.lewis-jones@nhs.net
There are over 63 publications describing the use of the CDLQI world-wide. An updated version of this list is available from
HERE.
Translations
Here are the
Translations and
Cartoon versions of the CDLQI
If it is required to make a further translation of these Indexes into other languages it is essential that validated translations be used. At the very minimum this requires two independent translators translating the measures from English into the alternative language. These two translators then discuss their translations and agree on a single translation in the alternate language. At this stage a third and fourth translator are asked to independently back-translate the alternate language version into English. At this stage the back-translations need to be reviewed by the copyright holders. Nearly always small problems become apparent at this stage and it is necessary for further changes to be made in the alternative language translation. This then needs to be validated by a further process of back-translation. Advice on this process can be gained from the address below.
Please note that the copyright for any translation is retained by the original copyright holders and is not transferred or shared with any additional copyright holders even though they may have been involved in the translation.
Charges
There is a small charge for the use of the CDLQI. This charge is based upon the total number of patients to whom the Index is administered. It is not based upon the frequency with which the questionnaires are administered to each individual patient.
These charges are always waived by the copyright holders for non-funded 'academic' studies and they are mainly applied to pharmaceutical companies using these Indexes in Phase II and Phase III studies. Please contact the authors concerning this. The charge per patient is as follows:
UK:
£5.00
USA and rest of world:
$9.50
(Plus exchange rate at the time of invoicing)
CDLQI:
50% of the payment should be made by cheque as per invoice from the Cardiff University.
50% of the payment should be made by cheque to the following account 'Tayside Dermatology Research Fund' and sent to Dr M S Lewis-Jones at the address above
Instructions for use
Children's Dermatology Life Quality Index (CDLQI)
The Children's Dermatology Life Quality Index questionnaire is designed for use in children, i.e. patients from age 5 to age 16. It is self explanatory and can be simply handed to the patient who is asked to fill it in with the help of the child's parent or guardian. It is usually completed in one to two minutes.
Scoring
The scoring of each question is as follows:
| Very much |
scored 3 |
| A lot |
scored 2 |
| A little |
scored 1 |
| Not at all |
scored 0 |
| Question unanswered |
scored 0 |
| Question 7: "prevented work or studying" |
scored 3 |
The CDLQI is calculated by summing the score of each question resulting in a maximum of 30 and a minimum of 0. The higher the score, the more quality of life is impaired. The CDLQI can also be expressed as a percentage of the maximum possible score of 30.
Detailed analysis of the DLQI
The CDLQI can be analysed under six headings as follows:
| Symptoms and feelings |
Questions 1 and 2 |
Score maximum 6 |
| Daily activities |
Questions 4, 5 and 6 |
Score maximum 9 |
| Leisure |
Questions 7 |
Score maximum 3 |
| Work and School |
Question 3 and 8 |
Score maximum 6 |
| Personal relationships |
Questions 9 |
Score maximum 36 |
| Treatment |
Question 10 |
Score maximum 3 |
The scores for each of these sections can also be expressed as a percentage of either 6 or 3.
The severity banding for CDLQI scores:
0-1 = no effect on child's life
2-6 = small effect
7-12 = moderate effect
13-18 = very large effect
19-30 = extremely large effect
Ref: Waters A, Sandhu D, Beattie P, Ezughah F, Lewis-Jones S. Severity stratification of Children's Dermatology Life Quality Index (CDLQI) scores. Br J Dermatol 2010; 163 (Suppl 1): 121.
Interpretation of incorrectly completed questionnaires
There is a very high success rate of accurate completion of the DLQI. However, sometimes subjects do make mistakes.
1. If one question is left unanswered this is scored 0 and the scores are summed and expressed as usual out of a maximum of 30.
2. If two or more questions are left unanswered the questionnaire is not scored.
3. If both question 7a and 7b are completed the higher of the two scores should be counted
References
Lewis-Jones MS, Finlay AY. The Children's Dermatology Life Quality Index (CDLQI): Initial validation and practical use. British Journal of Dermatology, 1995; 132: 942-949.
Cartoon version of CDQLI
The cartoon version is described in the following articles:
Holme SA, Man I, Sharpe SL, Dykes PS, Lewis-Jones MS, Finlay AY. "The Children's Dermatology Life Quality Index: Validation of the Cartoon Version". British Journal of Dermatology 2003; 148: 285-290.
P.E. Beattie* and M.S. Lewis-Jones. A comparative study of impairment of quality of life in children with skin disease and children with other chronic childhood diseases. Br J Dermatol 2006; 155: 145-151
Clayton T H, Clark S M, Britton J, Pavolv S, Radev S. A comparative study of the Children’s Dermatology Life Quality Index (CDLQI) in paediatric dermatology clinics in the UK and Bulgaria. JEADV 2007; 21: 1436-1437.
